Ukraine

20^th / 33

3 good
4 not good
4 to improve

Country Stats

Coverage index for essential health services

7320^th

GDP Per Capita ($)

$3,724.9424^th

Current expenditures on health per capita ($)

$248.1324^th

Health Expenditure (% of GDP)

7%18^th

Health expenditure through out-of-pocket payments per capita ($)

$126.842^nd

Share of out-of-pocket payments of total current health expenditures (%)

51%24^th

Share of out-of-pocket payments of GDP Per Capita

3%24^th

Country performance categories & scores

Access to SMA medicines

Currently, three SMA medicines are approved by the European Medicines Agency (EMA). The charts below show the access situation for these medicines by country. In addition to these approved treatments, several others are being evaluated in clinical trials.

SMA Diagnostics

SMA is usually diagnosed through a genetic blood test to check for the presence of the SMN1 gene. Access to SMA newborn screening and early treatment are crucial to improve health outcomes in SMA.

SMA health care ecosystem

Access is greater than access to diagnostics and SMA medicines. It means also access to information regarding the different European healthcare systems.

Governance, Infrastructure and Policy

Disease Statistics

Treatment Pathways

Stakeholders

SMA Patient Organisation

Children with SMA (CSMA)

HTA Organisation

HTA Department of SEC of Ministry of Health of Ukraine

Ministry of Health

Ministry of Healthcare of Ukraine

Health System Categorization ¹

Compulsory contributory health insurance schemes and compulsory medical saving accounts (CMSA) as Percentual share of total current health expenditure (CHE)

Governmental Schemes as Percentual share of total current health expenditure (CHE)

Other sources, e.g. Out-Of-Pocket spending

I wish that everyone could get access to SMA medicines. Everyone. I feel that it's unfair that we have to rely not only on money, but on governments, insurances, or medical companies to receive treatment. It's unfair. I wish that everyone could get it.

Meet Nataliia

Adult care benchmarking

Care for adults living with SMA

Benchmarking aggregated score = not good

There is a growing network of reference centres for the treatment of SMA in Ukraine.
A Ministry of Health working group in Ukraine is developing a national SMA medical care protocol based on the international standards.
Informal caregivers can potentially receive compensation as life assistants, even though obtaining reimbursement may be challenging.

Adults living with SMA have very limited national access to disease modifying treatments available across Europe, as well as to clinical trials.
Although a registry from the Ukrainian Foundation for Children with SMA currently exists that collects data on adults living with SMA, it is not being used by the Ministry of Health.
There is insufficient reimbursement for both medical and non-medical assistive devices, along with a general lack of support to enable adults living with SMA to live independently.

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goodto improvenot goodEarly access or pilot programmenot authorised or not availablemissing data

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OdySMA is a participatory advocacy tool. Therefore SMA Europe cannot warrant the completeness, reliability, or absolute accuracy of the data shared on OdySMA, as there may be changes that our members and supporters do not immediately inform us of. Should you identify inaccuracies or omissions, please contact laura.gumbert@sma-europe.eu us and let us know. We count on you!