Stabilising medicines for

SMA exists, pan-European

access does not

See how your country performs in our access map

Having or not having

access to treatment

and care impacts lives

View our 'real-life' access journeys

Benchmarking care for

adults living with SMA

Defining different calls to action for policy change

OdySMA inspired by Homers epic “Odyssey”, is a bold initiative to reveal the “quest to access” of people living with Spinal Muscular Atrophy (SMA) by mapping, visualising and centralising knowledge around access issues and by driving advocacy around it.

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Countries profiled across 21 datasets

DATA VIEWS
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Key performance ranking & real time country scores

NATIONS LEAGUE
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Adult care benchmarking country reports

ADULT CARE

Real-life Stories

The real-life stories of people living with SMA show how access to treatment and care can impact lives.

Meet our community & learn more about their access journeys. 

All real-life stories

OdySMA: Advocacy towards change

Access to healthcare differs substantially across the spectrum of all individuals living with SMA as well as across European countries. With our initiative “OdySMA – a quest to access” SMA Europe ‘s goals are to identify hurdles to access to initiate advocacy and policy shaping initiatives to overcome them.

OdySMA follows a participatory approach to collect large volume of data, offer interactive visualisation, build capacity to drive change through impactful advocacy. With our goal that NO ONE IS LEFT BEHIND

Advocacy

No one is left behind – why?

"No one is left behind” is a key driver to SMA Europe’s advocacy work. This means unrestricted access to the optimal medicine, treatment, care and diagnostics regardless of location, age, mobility or SMA type to stop access inequalities. 

Let us rise together today for change!

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An SMA Europe initiative, supported by:

BiogenNovartisRocheScholar Rock

OdySMA is a participatory advocacy tool. Therefore  SMA Europe [www.sma-europe.eu] cannot warrant the completeness, reliability, or absolute accuracy of the data shared on OdySMA, as there may be changes that our members and supporters do not immediately inform us of. Should you identify inaccuracies or omissions, please contact [laura.gumbert@sma-europe.eu] us and let us know. We count on you!