OdySMA inspired by Homers epic “Odyssey”, is a bold initiative to reveal the “quest to access” of people living with Spinal Muscular Atrophy (SMA) by mapping, visualising and centralising knowledge around access issues and by driving advocacy around it.
Real-life Stories
The real-life stories of people living with SMA show how access to treatment and care can impact lives.
Meet our community & learn more about their access journeys.
OdySMA: Advocacy towards change
Access to healthcare differs substantially across the spectrum of all individuals living with SMA as well as across European countries. With our initiative “OdySMA – a quest to access” SMA Europe ‘s goals are to identify hurdles to access to initiate advocacy and policy shaping initiatives to overcome them.
OdySMA follows a participatory approach to collect large volume of data, offer interactive visualisation, build capacity to drive change through impactful advocacy. With our goal that NO ONE IS LEFT BEHIND
No one is left behind
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OdySMA is a participatory advocacy tool. Therefore SMA Europe cannot warrant the completeness, reliability, or absolute accuracy of the data shared on OdySMA, as there may be changes that our members and supporters do not immediately inform us of. Should you identify inaccuracies or omissions, please contact us and let us know. We count on you!